Friday, August 27, 2010
Gotta Love Set backs
Well little Miss is taking her own approach on things! She didnt like mom and dads goal of going home next week. Dr Abe came to talk to us today and said that we shouldnt plan on her going home next week. :( She has been having more bradys and desats when she is eating. Sally from speech therapy came to feed her today and she desated quite a bit during her feeding. She said she isnt ready yet to go home the way she is eating right now. He did however lower her cannula flow to 1/8 of a liter which is the lowest the one on their wall goes so they were trying to find a new flow sensor thingy or were going to have to hook her up to an oxygen tank that goes lower than 1/8. So I guess at this point were just going to go day by day and try not to look to far ahead. Shes the boss as nurse Kathy would say! Boy does she know her or what!!! This news has my head spinning. In one sense I know its best for her. In another I'm super bummed! We were doing so well and moving at a good pace, and I quit my job, and my baby was coming home!! Everything was PERFECT! Now everythings up in the air! Never know what to think. Dr Abe did say tho that shes proved everyone wrong already so she could just all of the sudden take off and make it home late next week, but not if she continues this way. My emotions are stirring everywhere and I feel like I could just bawl at the drop of a dime! But no time for that! Need to just keep trucking and leave it in gods hands! He hasnt failed us yet and he wont this time!