Lilypie - Personal pictureLilypie Premature Baby tickers Lilypie Angel and Memorial tickers

Thursday, March 24, 2011


Yesterday we had to drive 100 miles to Milwaukee to see Brielles Pulmanologist Dr. Just like the last time we had to go down there, there was a snow storm! We got a total of 12" and lots of ice and sleet! It was NOT fun! But anyways my mom took off of work to come with me and Brielle! The appt went great!! They took her off her pulmacort breathing treatments!!! No more treatments unless she gets sick!! She is a whopping 15lbs 3.8oz!! 24.5" long! She is growing nicely and in growing so big her lungs are getting bigger and better!! So now they will see her every 6 months and keep monitoring her lungs to make sure nothing pops up!

After our appt we met my cousin Angie, who goes to school at the hospital, for lunch. It was wonderful!!

After lunch we had to leave...right? So we walk out into the parking ramp which is connected right to the hospital and get on the elevator to go to our car. Well easier said than done. We didnt know what level we parked on. Neither one of us checked! So we go to 4 and theres no cars! Mom asks me if I remembered to take out the keys...DUH! She thought the car was stolen lol. So then we go to level 5. Well WRONG! That was just windows. Then to 3. We get off but our car was no where to be found! We get back on and go to 2, but thats the level we went to to get to the hospital. So that wasnt it either. We start to walk to ramp hoping to run into our car, with no luck!! We are about to get back on the elevator and a van pulls up and asks if we lost our car. We laugh and say YES! She says get in and we will drive around and see if we can find it. So she starts to drive and turns out her and my mom are both Ellenbeckers and somewhere down the line related. Small world! Or is it? We believe Grandpa Art sent us an Angel in a van! :)

Soooo my mom says "O THERE IT IS!" So the lady drops us off at the begining of the row and we walk to the car. News flash! That IS NOT our car! No panic was setting in! It was pretty chilly and we were walking and I was just carrying Brielle. We walked around the corner and there it was!!! THANK THE LORD!! We laugh about it now and we laughed quite a bit while it was happening but when the van pulled away and it wasnt our car, I admit, I got alittle worried! I called my husband and he could just laugh! What else was he to do? Its all funny now!!! DUDE WHERES MY CAR??? Thats our catch phrase now! hehe

Tuesday, March 22, 2011

Nothing New here!

Well...Hmm....Thats about what I have to write about! lol. I feel bad that I dont post as often as I used to! But to me, our life is pretty boring, yet busy!! Tomorrow we take the road trip to Milwaukee, WI to see the pulmonologist Dr. To me it feels like a wasted probably 2 hour drive since we are gettin 3-6" of snow and sleet and rain! UGH! But I will go and show off my miracle child! All the therapists and Doctors we see lately just cant believe how she is doing for a 24 weeker. She is amazing. We know! :)

I had to go get my check today at work since my purse was stolen last weekend along with your video camera outta my trunk of all places!! Brielle caught sight of a balloon! I've been waiting for the day she would notice that! Well mom couldnt resist and bought her one! She LOVES It! Giggles sooo hard when I attach it to her sock. Its cute! Cheap $3 toy! She has also in the last couple days just noticed mirrors. She smiles and trys to grab our faces in the mirror.

Yesterday Occupational therapy was here and said she is making much better use of her thumb. So watch it. I was pretty disappointed in her response. She didnt check out the thumb until I said something. Last month I was in tears of this thumb and this month she doesnt say ONE word about it!! UGH! Josh is persisting I ask for a new OT but I think maybe I will see one more time and see if it was just an off day for us or what the deal is. I emailed her Physical therapist who I adore and she answered my questions that OT over looked and ignored me on. I dont take lightly to that when thats why you are here! The best interest of Brielle! I am her advocate and her voice and dont ignore me! OKAY rant over! hehe

Brielle is getting soooo good at mastering solids!! She LOVES carrots, green beans, PEAS of all things...YUCK! lol, pears, applesauce, oo and ICE CREAM! lol I gave her some of my blizzard and she was like a little bird! Everytime I put a spoonful in my mouth her mouth was wide open! It was hilarious!!! She doesnt care for peaches, mangos, and bananas are a hit and a miss. Her Speech Therapist cancelled today with the weather and we were chatting on the phone of trying to get Brielle up to 3 jars of food a day. Dr. Kranik said as of June we can pull her off the Neosure 22!!! He would like to keep her on some type of milk whether it be formula or whole milk up to September which would have been her official 1 year due date. Im cool with that! But Im cool with getting her off the expensive Neosure and being about to buy Target, Walmart, or babies r us brand formula!

Brielle is a little ham! She giggles over just about anything! She went to a turkey calling seminar with her dad this last weekend and she was giggling when the guy was blowing the turkey call. I could just imagine that!!! If I turn around really fast and say "HI" or "brielle" or anything really she geeks out and flings her arms and legs and giggles. Its adorable!!

Well little miss is on her belly and mad cuz she still hasnt figured out how to get back! And Im going to feed her corn and sweet potatoes!!! Toodles!

Friday, March 11, 2011

Rock Star

Well not too much going on here. But I still want everyone to know that I am still blogging and figured I should write SOMETHING!

We had Brielles 9 month check up this last Tuesday. She is 14lbs 7oz and 24.5" long. She FINALLY made the charts!! She is 1% for weight, 0% for length and 5% for head circum (42cm) Her pediatrician said she is a "Rock Star" She looks great for a 24 weeker and he could be happier with how shes progressed!! Most babies born as early and sick as she was are usually on oxygen past their first birthday and have had many illnesses. Not this cat! She keeps on roaring thru what she is dealt!!

Wednesday we had her physical therapist, Lisa L come. She called Brielle a "Super star". There are 2 twins that she sees that were born at 24 weeks with lesions on their brains like Brielle has, but they have ALOT more. And they are not doing well :( They wont have much of a life :( I cant stop thinking about those boys! It makes me think alot of my precious Ayden. Dont take this the wrong way, because I wish he was here with me today, but It makes me think of what kind of life he would have had. All the research Ive done, it doesnt look good. He would have been born with little to no lungs and passed away shortly after birth or struggled to breathe and be on oxygen a long time. He probably would have had some sort of brain bleed that would have made him a vegetable. Seeing your child encounter those hurdles is soooo difficult! Our baby hasnt had to hurdle such high hurdles, but I know the lower hurdles hurt so deep I cant even imagine their hurt!!

Lisa took another look at the tightness in Brielles thumb. She said it definately is tight. But after hearing about the twin boys I was taking this with more of a grain of salt. My child is going to be ok. My child has a great future ahead of her. My child will overcome this hurdle! Im not so sure those boys have the same opportunity Brielle has. We have worked thru 9 months of hurdles. And we will keep running and leaping with everything we have! We have an amazing little miracle on our hands. Everyday she flashes me that smile and giggles at the quarky things we do Im just in Awe. 9 months ago I didnt know if we would even be leaving with a baby. Let alone a miracle like this one! She is rolling over and cutting a tooth I believe! Lots and lots of drool!!! She started sleeping thru the night about 2 weeks ago! How sweet that is!! She goes down anywhere between 6:30 and 7 and wakes between 4:30-5 for a bottle and goes back down til about 6:15-7:30. We have it pretty rough!!