Brielle got another round of botox today. We were talking 2 weeks ago about how we were not sure if she really needed botox. She looked pretty good. But the last week she has gone down hill big time. The simple things like putting her foot up on the step to climb the stairs, she could not do. She was walking on her tip toes 90% of the time and just could not get her foot flat due to her ankles being so incredibly tight. She has started grabbing her upper legs again so Im thinking the muscle spasms are back and I am thinking about restarting baclofen. But maybe the botox will be enough to loosen her enough where they will go away. Maybe the chiropractor tomorrow will be able to help with that as well. Only time will tell. It is nice tho that she is getting to the age where she can tell me. Ive been trying to teach her what hurt means so she can tell me. Shes getting it down pretty good.
Brielle is the best big sister a mom could ask for. She LOVES to help get her nuk, “cover up” her sister, get bottles, throw diapers away, and her all time fav hold her amongst much more! I love to watch her interact with Tayvah. It is so adorable and brings a smile to my face every single time. Her favorite shows are Full house, max and ruby, dora, and SID the science kid. She can count to 12, says ABCDE and can say some with a song playing. She loves to watch her favorite shows and sing along with them. Brielle and her cousin Johanna start Ballet classes tomorrow night. I think she will love it, but we will see!! She loves to play hide and seek! She is getting pretty clever with her hiding places lately! The other day she was under the dog beds, under the bedspread that she pulled on the floor a bit, and the best was when she went in the closet. She sits so still for a 2 year old and she is so quiet. The closet, I didnt see her go in there (and didnt even know we were playing!) and she scared the crap out of me because I couldnt find her!! She laughs and laughs and hits her leg because she thinks she is just so funny! Which she truly is pretty funny :) She loves to watch her auntie Kaila kick butt in basketball! However she dislikes the pep band with a passion! (loud noise). She loves to take her doll and feed her and burp her etc, everything that I do with Tayvah. She play Tea party and is really getting her “pretend” stage going. Not a day goes by that I just stare at her and marvel in how far this little has come! I still volunteer at the NICU on Monday night. There are some little ones up there right now and to see the parents going thru what Josh and I went thru 2.5 years ago makes me really count my blessings. Talking to those parents really makes me remember why I am up there. Just to show them how far Brielle has come and what she has overcome and to see the hope on their faces is so rewarding! That is why I do it. I would have LOVED to have someone to talk to. Someone to offer me that glimmer of hope. Im blessed that I get to do that for others, and come home to the miracles in my life.