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Sunday, September 9, 2012

Waiting game

Brielle still has this wheeze. I took her in to the Dr again (5th time now) and he put her on singular and a nasal steroid spray. He said her lungs sound great and that it isnt her lungs that are making the wheeze its all the congestion in the back of her throat. A 2 year old doesnt know how to clear that. So we will give the nasal spray and see how she is this Thursday.

Brielle got her orthodic to stretch her ankle at night. We put it on her Wed night and she did very well with it! I didnt know if she would tolerate it and actually sleep thru the night with it on but she did! Of course that was the first thing she asked me that morning was to take it off, but she did it! I then noticed after taking it off that she had a big red and puffy raised sore on the top of her foot. I took pictures of it so I could show the orthodic guy (Peter). Then her therapist came and I showed her. The orthodic has been off about an hour and half and the red mark was still there. She said that it should go away in 30 min or less. Then she noticed her heel was all red too. We drew some marks on her heel to show Peter. Peter came on Friday and the mark was still visable. He put some extra padding on her brace but said that she does have a high toe bone that ends there so hes afaid it will always be alittle red. But hes hoping that the extra padding helps. So we will try them again tonight, we wanted to give her a break and let the redness come down a bit. Then our goal is to get her a stretch of 20 degrees up from the 90 degrees the brace is set at. Right now we can stretch her comfortably 10 degrees. So it will take alittle bit to get her to the 20, but he said once kids reach that 20 degree goal, they are walking much much better and then she should be able to just wear the SMO (Ankle) of the brace and not the full DAFO that goes up to her knee.

2 years ago today, is the anniversary that Brielle stopped breathing. It is still clear as day in my head. The dates clear in my head. Its hard to forget certain dates. Such as my water breaking May 7, 2010. Ayden passing May 31, 2010. Brielles birthday June 1, 2010. Coming home from the NICU Sept 1, 2010. Stopping breathing Sept 9, 2010. Coming home second time from the NICU Sept 14, 2010. Im not sure the dates will ever leave my mind. But One thing I do know for sure, is that Brielle is a miracle. She is incredible and has taught myself as well as so many others the true meaning of life. Thru this incredibly difficult journey, we have met incredible people!! People who have impacted our lives in ways they will never understand! We are so very blessed to have each and every one of you in our lives! The 911 dispatcher that took my call that night, just posted a "tribute" to Brielle. She too, has not forgotten 2 years later. That means alot! Im so glad that we can be a part of Jennis life still 2 years later! As well as the NICU nurses, doctors, and respiratory therapists. Without each and every one of you, Brielle would not be here. You all are incredible people!!

I had Apples check up last Monday. We had a growth ultrasound that showed she is 6 lbs 10 oz. 86% for 35 weeks. At 90% they start to be a bit concerned. After the u/s I told Josh to just take Brielle home because my Dr wanted to check me and do the strep B test. Never thinking anything would be "alarming". My Dr came in the room and asked me how I was. I said pretty good! She said Good then sat down with a Sigh. She said "Baby is in the 86% and we dont tend to worry until 90%. Shes a good size, but she is laying side ways which is a concern. Usually by 36 weeks they go head down, but I am alarmed that she wont because of your previous twin pregnancy. Your uterus is stretched due to the twins being sideways last time so she has alot more room in there to stay sideways. And lets face it, I would rather take the ride laying in a hammock than with my head down too." Okay, So what do we do from here I ask?? She said that we need to be alert of any signs of labor. If I go into labor (Any contractions what so ever or my water breaks) and she doesnt drop head down (Which at 36 wks tomorrow she hasnt yet) I need to rush to the hospital. She said that if come in on my Monday appointments and I am dialated to 4cm she will take the baby right then and there so be prepared. So she then does my check. She was checking longer than normal and she goes "Hmm" I think Hmm what????? "You are 2cm dialated" Really??? Okay NOW what? She again emphasizes that if I show ANY signs of labor to get to the hospital immediately. She asked how far we lived from the hospital and I told her 25 min, and she said if your water breaks you just call an ambulance. Now she has me alittle scared. How come this is such a need for panic?? I ask her and she said that because baby is transverse, if I go into labor she could drop fast and pinch her cord or strangle herself. That makes me feel all the better! So now I am a paranoid basket case and trying to force this child head down. But she already is stubborn as an ox and doesnt respond to anything I try. I asked about turning her and my Dr said she could not do an manual version because of my previous C Section. It could rupture my scar. So its up to baby to go head down. She had me get a belt to wear to squish her down, but she just kicks at it and shows shes mad and wants it off instead of moving away from it. Ive tried crawling on all 4s and doing pelvic rocks. Shes still laying sideways. I thought for an hour last night she was starting to go down, but she is back up by my belly button hanging out quite contently. I guess we will see what tomorrow brings! Yesterday I went to Cheese fest with my friend Karen and to a few rummage sales and then my cousins twins birthday party, so I was busy and up most of the day and had back pain galore and a few tightening of the stomach, possibly contractions? Josh is in his brothers wedding this weekend and Im alittle nervous. I didnt do as much as I will be this weekend so it has me alittle on edge. But Ill just listen to my body and do what I can do. Shes got to stay in til Sept 17th atleast!

1 comment:

  1. The tightening feeling is probably braxton Hicks contractions...the real thing is hard to ignore :)